ERIC Number: EJ743214
Record Type: Journal
Publication Date: 2006
Pages: 10
Abstractor: Author
ISBN: N/A
ISSN: ISSN-0047-6765
EISSN: N/A
Available Date: N/A
Patient and Parent/Guardian Perspectives on the Health Care of Adults with Mental Retardation
Horrell, Sarah C. Voss; MacLean, William E., Jr.; Conley, Virginia M.
Mental Retardation: A Journal of Practices, Policy and Perspectives, v44 n4 p239-248 2006
Individuals with mental retardation and their parents/guardians have long been neglected in health care research. In this study we used a qualitative methodology to describe the experiences adults with mental retardation and their parents/guardians have with the delivery of primary care services. Semi-structured in-depth interviews were conducted with 12 adults who had mental retardation and 9 parents/guardians. The grounded theory approach was utilized to guide data collection and analysis. Findings suggest an overall positive experience with primary care services. Unique themes were identified that distinguished parent/guardian experiences from those of adults with mental retardation, who focused on immediate, concrete issues related to service delivery, whereas parents/guardians focused on more peripheral or abstract issues related to the delivery of primary care.
Descriptors: Patients, Mental Retardation, Adults, Research Methodology, Primary Health Care, Interviews, Parent Attitudes, Qualitative Research, Data Analysis
American Association on Mental Retardation. P.O. Box 7065, Lawrence, KS 66044-7065. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://www.aamr.org/Periodicals/index.shtml.
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A

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