ERIC Number: EJ723078
Record Type: Journal
Publication Date: 2005-Oct
Reference Count: 16
The Use of Quality of Life Data at the Organization and Systems Level
Keith, K. D.; Bonham, G. S.
Journal of Intellectual Disability Research, v49 n10 p799-805 Oct 2005
Background: To date researchers have given little attention to the use of quality of life (QOL) data for organization and systems-level change. This article presents two state-level examples of how QOL data are currently used in the USA. Method: Individuals with intellectual disability (ID) were assessed on an ongoing basis using two multidimensional QOL instruments. Data were analysed at the individual and organizational level. Results: Examples of statewide data utilization include: (1) determining significant predictors of quality outcomes; (2) developing provider profiles; (3) comparing individuals with ID with those without ID; (4) developing state-level performance standards; and (5) implementing continuous programme improvement. Conclusions: The availability of this type of data allows service delivery systems to: (1) significantly alter the relationship between individual consumers and service providers; (2) open the system to scrutiny by citizens with and without ID; (3) improve responsiveness and quality outcomes; and (4) shape future directions of the service delivery system for people with ID.
Descriptors: Quality of Life, Mental Retardation, Disabilities, Change Strategies, Data Collection, Profiles, Predictor Variables, Caregivers, Individual Characteristics, Delivery Systems
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: United States