ERIC Number: EJ1231156
Record Type: Journal
Publication Date: 2019-Nov
Pages: 12
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
The Double-Edged Sword of Vulnerability: Explaining the Persistent Challenges for Practitioners in Supporting Parents with Intellectual Disabilities
MacIntyre, Gillian; Stewart, Ailsa; McGregor, Sharon
Journal of Applied Research in Intellectual Disabilities, v32 n6 p1523-1534 Nov 2019
Background: Evidence suggests that parents with intellectual disabilities can be "good enough" parents with appropriate support that focuses on the whole family. This paper brings together theories of vulnerability with an ethics of care approach to reflect on challenges for practitioners in supporting parents, drawing upon data from a study carried out in Scotland. Method: An online survey was administered to practitioners in three settings, and follow-up interviews were carried out with key informants. Results: Pockets of good practice existed but a number of barriers to supporting families remained. These related to a lack of accessible information, difficulties in identifying and engaging with families at an early stage and poor joint working across agencies. Conclusion: The study concludes by arguing that practitioners' constructions of families as "vulnerable" reflects negatively on their perceived capacity to parent, creating further barriers in accessing appropriate support and reducing expectations of success.
Descriptors: Intellectual Disability, At Risk Persons, Parenting Skills, Foreign Countries, Family Programs, Barriers, Access to Information, Identification, Agency Cooperation, Labeling (of Persons), Expectation, Caregivers, Caregiver Attitudes, Parents with Disabilities
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom (Scotland)
Grant or Contract Numbers: N/A