ERIC Number: EJ1231104
Record Type: Journal
Publication Date: 2019-Nov
Pages: 13
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: N/A
Available Date: N/A
What Is and Isn't Working: Factors Involved in Sustaining Community-Based Health and Participation Initiatives for People Ageing with Intellectual and Developmental Disabilities
Spassiani, Natasha A.; Meisner, Brad A.; Abou Chacra, Megan S.; Heller, Tamar; Hammel, Joy
Journal of Applied Research in Intellectual Disabilities, v32 n6 p1465-1477 Nov 2019
As people with intellectual and developmental disabilities (I/DD) age, it is important that I/DD agencies are prepared to support healthy ageing in homes and in communities. This study explored supports and barriers to sustaining community-based health and participation initiatives (CBHPI) for people ageing with I/DD living in group homes managed by agencies. The study utilized interviews and photovoice with 70 participants--35 individuals with I/DD and 35 management/direct support agency staff. Data were analysed through content analysis and triangulation of data where five themes emerged: Agency values and policies related to healthy ageing; resources and staff competencies; communication between management and staff; community/university partnerships; and peer relations. Findings show that I/DD agencies and people with I/DD value CBHPI, but they find them difficult to sustain due to limited resources and lack of training specific to ageing with I/DD. Conducting system-level research within I/DD agencies to include first-person accounts of people with I/DD, staff and management provides insight on how to effectively support the needs of people with I/DD to improve their health and community participation as they age.
Descriptors: Aging (Individuals), Intellectual Disability, Developmental Disabilities, Group Homes, Access to Health Care, Values, Policy, Resources, Caregivers, Competence, Administrator Role, Interpersonal Communication, Peer Relationship, School Community Relationship, Colleges
Wiley-Blackwell. 350 Main Street, Malden, MA 02148. Tel: 800-835-6770; Tel: 781-388-8598; Fax: 781-388-8232; e-mail: cs-journals@wiley.com; Web site: http://www.wiley.com/WileyCDA
Publication Type: Journal Articles; Reports - Research
Education Level: Higher Education; Postsecondary Education
Audience: N/A
Language: English
Sponsor: National Institute on Aging (DHHS/NIH); National Institute on Disability and Rehabilitation Research (ED/OSERS)
Authoring Institution: N/A
Grant or Contract Numbers: P30AG022849
Author Affiliations: N/A