ERIC Number: EJ1230647
Record Type: Journal
Publication Date: 2019-Nov
Pages: 14
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: N/A
UK Parents' Experiences of Their Child Receiving a Diagnosis of Autism Spectrum Disorder: A Systematic Review of the Qualitative Evidence
Legg, Hannah; Tickle, Anna
Autism: The International Journal of Research and Practice, v23 n8 p1897-1910 Nov 2019
The purpose of this article is to systematically identify, appraise and synthesise qualitative research concerning UK parents' experiences of their child receiving a diagnosis of autism spectrum disorder. In total, 11 articles were located through a systematic search of five databases, reference lists, citations and grey literature. These were critically appraised and their results synthesised using meta-ethnography. The quality scores given to included studies were variable, so suggestions are made to improve reporting of future research. Three third-order constructs were developed: (1) emotional needs, (2) informational needs and (3) relational needs. Each relates to parents' needs as they navigate the process of making sense of their child by seeking and adjusting to a diagnosis of autism spectrum disorder. Parents' experiences of assessment and diagnosis of their children varied, but these needs were evident across the course of the process. Fathers seemed to find it more difficult than mothers to reconcile having a child with autism spectrum disorder, which may have been grounded in a sense of exclusion from the assessment process. The findings should be considered by professionals working with children, particularly those directly involved in diagnosing autism spectrum disorder. Clinical implications emphasise the need for consideration of parents' emotional needs, provision of information to aid understanding, and strong relationships with professionals. Future clinical research, which should be informed by quality standards, might develop and evaluate standards of assessment and diagnosis, including post-diagnostic support.
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Clinical Diagnosis, Parent Attitudes, Mothers, Fathers, Psychological Needs, Information Needs, Parent Child Relationship, Interpersonal Relationship, Asperger Syndrome, Health Personnel, Emotional Response, Evidence
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Publication Type: Journal Articles; Information Analyses
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: United Kingdom
Grant or Contract Numbers: N/A