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ERIC Number: EJ1227850
Record Type: Journal
Publication Date: 2019-Sep
Pages: 19
Abstractor: As Provided
ISSN: ISSN-1744-6295
Balancing Personal Wishes and Caring Capacity in Future Planning for Adults with an Intellectual Disability Living with Family Carers
McCausland, Darren; Brennan, Damien; McCallion, Philip; McCarron, Mary
Journal of Intellectual Disabilities, v23 n3 p413-431 Sep 2019
Most people with intellectual disabilities (IDs) live at home with family, and most carers and care recipients wish to continue this arrangement. However, despite worry about what will happen when carers are unable to continue caring, most families do not plan for the future. The "Future Care Road Map" (FCRM) pilot study sought to enhance future care planning for families of adults with ID. Twelve families were facilitated through the FCRM process to establish future care plans, including future living and care arrangements. The pilot successfully improved future planning, but readiness of families and facilitation were important to outcomes. Continued care within the family was the most common future wish of care recipients. However, caring capacity emerged as a pervasive theme. Ultimately, it may be the capacity of the family, services or individual with ID themselves to provide future care which determines how feasibly future wishes translate into future plans.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Ireland
Grant or Contract Numbers: N/A