ERIC Number: EJ1221758
Record Type: Journal
Publication Date: 2019-Aug
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1362-3613
EISSN: N/A
Understanding and Awareness of Autism among Somali Parents Living in the United Kingdom
Hussein, Amal M.; Pellicano, Elizabeth; Crane, Laura
Autism: The International Journal of Research and Practice, v23 n6 p1408-1418 Aug 2019
Using vignettes and interviews, this study examined understanding and awareness of autism, and (a)typical development more broadly, among 32 Somali parents living in the United Kingdom. Results demonstrated that parents of both autistic (n = 16) and non-autistic (n = 16) children were just as likely to identify vignettes of typically developing children, yet parents of autistic children appeared more astute to signs of atypical development. Across the whole sample, parents commonly identified and labelled vignettes of autistic children, but experienced more difficulty labelling vignettes that described children with other forms of atypical development, sometimes mislabeling these children as autistic. This suggests that there is a need for greater support in recognising and identifying different types of atypical development in the Somali community (to mitigate the risk that the term 'autism' may take on its own meaning within the Somali community, becoming a euphemism for a range of developmental conditions). Analysis of interview data identified key sociocultural factors that either helped or hindered the inclusion of families with autistic children within the community, including the Somali community's: (1) perceptions of disability, (2) beliefs about the causes of autism in the Western world and (3) strong reliance on religious beliefs in understanding and accepting an autism diagnosis.
Descriptors: Parent Attitudes, Autism, Pervasive Developmental Disorders, Foreign Countries, Migrants, Child Development, Children, Labeling (of Persons), Inclusion, Cultural Influences, Community Attitudes, Religious Factors, Vignettes, Western Civilization, Barriers, Knowledge Level
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Somalia; United Kingdom (England); United Kingdom (London)
Grant or Contract Numbers: N/A