ERIC Number: EJ1195123
Record Type: Journal
Publication Date: 2018-Dec
Pages: 8
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1354-4187
EISSN: N/A
Breaking Bad News to People with Learning Disabilities: A Literature Review
British Journal of Learning Disabilities, v46 n4 p225-232 Dec 2018
Background: This article provides a literature review exploring reasons for disclosure and nondisclosure of bad news to people with learning disabilities. Connections are made to current policy, law and ethics to highlight the complexity of this issue. Methods: This review examines literature on disclosing bad news to people with learning disabilities from 2007 to 2017. A total of 13 articles were found with nine articles having a direct focus on breaking bad news. Results: The main themes identified from this review are maintaining rights and dignity, upholding duty of care, underestimating resilience, protection from harm and capacity to understand. Exploration of who should disclose is examined in reference to relatives, staff and healthcare professionals. Conclusions: Trends surrounding disclosure of diagnosis and prognosis to people with learning disabilities have not kept pace with the trend to disclose with the general population. People with learning disabilities are frequently not informed of their terminal diagnosis and often die without this knowledge. Equally, bad news concerning a friend or relative may also be withheld.
Descriptors: Intellectual Disability, Disclosure, Policy, Laws, Ethics, Civil Rights, Resilience (Psychology), Human Dignity, Allied Health Personnel, Family (Sociological Unit), Terminal Illness
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Publication Type: Journal Articles; Information Analyses
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A