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ERIC Number: EJ1189556
Record Type: Journal
Publication Date: 2014
Pages: 8
Abstractor: As Provided
ISBN: N/A
ISSN: EISSN-1469-9532
EISSN: N/A
Health Service Experiences to Address Mobility Decline in Ambulant Adults Ageing with Cerebral Palsy
Morgan, Prue; Pogrebnoy, Dina; McDonald, Rachael
Journal of Intellectual & Developmental Disability, v39 n3 p282-289 2014
Background: Adults ageing with a disability need lifelong access to health services to meet their changing needs. This study aimed to explore in depth the experience and impact of health service access to address mobility change in adults ageing with cerebral palsy (CP). Method: Semistructured interviews were conducted. Qualitative analysis and identification of themes were undertaken on resultant transcripts. Results: Six community-living adults (35-52 years) with CP, at levels II and III of the Gross Motor Function Classification System -- Extended & Revised (GMFCS-E&R), participated. All described adult-onset mobility decline and had experienced recent falls. Emergent themes explored the accessibility, nature, and type of health service available, comparisons to paediatric experience, and themes related to frustration, perceived control, and self-advocacy. Conclusion: Adults with CP report variability in the access to and matching of health service provided with self-perceptions of service type and need to address mobility decline. Adults with CP describe frustration regarding their experiences and may seek opportunities to increase self-advocacy regarding available health and support services.
Taylor & Francis. Available from: Taylor & Francis, Ltd. 530 Walnut Street Suite 850, Philadelphia, PA 19106. Tel: 800-354-1420; Tel: 215-625-8900; Fax: 215-207-0050; Web site: http://www.tandf.co.uk/journals
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Australia
Grant or Contract Numbers: N/A