ERIC Number: EJ1179977
Record Type: Journal
Publication Date: 2018-Jun
Abstractor: As Provided
Choice and Control within Family Relationships: The Lived Experience of Adults with Intellectual Disability
Curryer, Bernadette; Stancliffe, Roger J.; Dew, Angela; Wiese, Michele Y.
Intellectual and Developmental Disabilities, v56 n3 p188-201 Jun 2018
Increased choice and control is a driving force of current disability policy in Australia for people with disability and their families. Yet little is known of how adults with intellectual disability (ID) actually experience choice and control within their family relationships. We used interpretative phenomenological analysis of individual, semistructured interviews conducted with 8 Australian adults with ID to understand the meaning given to their experience of family support received around choice and decision making. Three themes were identified: (1) centrality of family, (2) experience of self-determination, and (3) limitations to choice and control. The participants identified trusted family members from whom guidance around choice and decision making was both sought and received, often involving mutual decision making and limitations to control.
Descriptors: Family Relationship, Intellectual Disability, Adults, Independent Living, Personal Autonomy, Self Management, Daily Living Skills, Phenomenology, Semi Structured Interviews, Decision Making, Self Determination, Foreign Countries
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://www.aaiddjournals.org/
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: Australia
Grant or Contract Numbers: N/A