ERIC Number: EJ1179096
Record Type: Journal
Publication Date: 2018-Jun
Abstractor: As Provided
Evaluating Sensory Processing in Fragile X Syndrome: Psychometric Analysis of the Brain Body Center Sensory Scales (BBCSS)
Kolacz, Jacek; Raspa, Melissa; Heilman, Keri J.; Porges, Stephen W.
Journal of Autism and Developmental Disorders, v48 n6 p2187-2202 Jun 2018
Individuals with fragile X syndrome (FXS), especially those co-diagnosed with autism spectrum disorder (ASD), face many sensory processing challenges. However, sensory processing measures informed by neurophysiology are lacking. This paper describes the development and psychometric properties of a parent/caregiver report, the Brain-Body Center Sensory Scales (BBCSS), based on Polyvagal Theory. Parents/guardians reported on 333 individuals with FXS, 41% with ASD features. Factor structure using a split-sample exploratory-confirmatory design conformed to neurophysiological predictions. Internal consistency, test-retest, and inter-rater reliability were good to excellent. BBCSS subscales converged with the Sensory Profile and Sensory Experiences Questionnaire. However, data also suggest that BBCSS subscales reflect unique features related to sensory processing. Individuals with FXS and ASD features displayed more sensory challenges on most subscales.
Descriptors: Genetic Disorders, Congenital Impairments, Intellectual Disability, Sensory Experience, Perception, Psychometrics, Measures (Individuals), Autism, Pervasive Developmental Disorders, Parents, Caregivers, Test Reliability, Factor Structure, Sensory Aids
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Publication Type: Journal Articles; Reports - Research
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