ERIC Number: EJ1168994
Record Type: Journal
Publication Date: 2018-Feb
Abstractor: As Provided
Parental Action and Referral Patterns in Spatial Clusters of Childhood Autism Spectrum Disorder
Schelly, David; Jiménez González, Patricia; Solís, Pedro J.
Journal of Autism and Developmental Disorders, v48 n2 p361-376 Feb 2018
Sociodemographic factors have long been associated with disparities in autism spectrum disorder (ASD) diagnosis. Studies that identified spatial clustering of cases have suggested the importance of information about ASD moving through social networks of parents. Yet there is no direct evidence of this mechanism. This study explores the help-seeking behaviors and referral pathways of parents of diagnosed children in Costa Rica, one of two countries in which spatial clusters of cases have been identified. We interviewed the parents of 54 diagnosed children and focused on social network connections that influenced parents' help seeking and referral pathways that led to assessment. Spatial clusters of cases appear to be a result of seeking private rather than public care, and private clinics are more likely to refer cases to the diagnosing hospital. The referring clinic rather than information spread appears to explain the disparities.
Descriptors: Parent Participation, Pervasive Developmental Disorders, Autism, Parents, Help Seeking, Clinical Diagnosis, Children, Foreign Countries, Social Networks, Referral
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: Costa Rica
Grant or Contract Numbers: N/A