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ERIC Number: EJ1156967
Record Type: Journal
Publication Date: 2017-Nov
Pages: 8
Abstractor: As Provided
ISSN: ISSN-1360-2322
Emergency Medical Services Providers' Perspective of End-of-Life Decision Making for People with Intellectual Disabilities
McGinley, Jacqueline; Waldrop, Deborah P.; Clemency, Brian
Journal of Applied Research in Intellectual Disabilities, v30 n6 p1057-1064 Nov 2017
Background: Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very few people with intellectual disabilities document their wishes. Methods: This exploratory-descriptive study incorporated mixed methods to analyse data collected consecutively (surveys, n = 239; interviews, n = 48) with EMS providers from five agencies. Data were subjected to a sequential quantitative-qualitative analysis applying a critical discourse analysis framework. Results: Findings indicate that 62.7% had treated a person with intellectual disability who had medical orders directing end-of-life care. Three themes (provider familiarity, organizational processes, sociocultural context) offer insights about how medical orders inform EMS providers during calls involving people with intellectual disabilities. Conclusion: Multiple contexts influence how wishes are documented and care provided to people with intellectual disabilities near life's end.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A