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ERIC Number: EJ1156943
Record Type: Journal
Publication Date: 2017-Nov
Pages: 10
Abstractor: As Provided
ISSN: ISSN-1360-2322
Making Sense of Bereavement in People with Profound Intellectual and Multiple Disabilities: Carer Perspectives
Young, Hannah; Hogg, James; Garrard, Brenda
Journal of Applied Research in Intellectual Disabilities, v30 n6 p1035-1044 Nov 2017
Background: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has considered how carers conceptualize bereavement in relation to this group. Method: Semi-structured interviews obtained responses from seven carers. Transcripts were examined using interpretative phenomenological analysis. Results: Two superordinate themes emerged: "difficulty articulating the experience of loss" and "making sense of bereavement through familiar patterns". Conclusions: Carers conceptualize bereavement primarily in cognitive terms, but also take account of relational factors mediating loss. Implications for training and further research are outlined.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A