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ERIC Number: EJ1156388
Record Type: Journal
Publication Date: 2017-Oct
Pages: 14
Abstractor: As Provided
ISSN: ISSN-1934-9491
Informing and Equipping Parents of People with Intellectual and Developmental Disabilities
Gilson, Cathy B.; Bethun, Lauren K.; Carter, Erik W.; McMillan, Elise D.
Intellectual and Developmental Disabilities, v55 n5 p347-360 Oct 2017
The importance of supporting families with members who have intellectual and developmental disabilities (IDD) is well established in both policy and research. Yet little is known about how familiar parents are with existing resources (e.g., programs, supports, trainings), what information they would consider most helpful, and how they would prefer to access resources. Our study examined the resource needs of 1,738 parents of children and adults with IDD in the state of Tennessee. Most parents reported limited familiarity with programs across every domain (e.g., residential, vocational, postsecondary). The extent to which parents indicated various types of information would be helpful varied by demographic factors (e.g., daughter or son's age, disability diagnosis, socioeconomic status), as did the avenues through which they indicated they were most likely to access information and resources. We offer recommendations aimed at equipping parents with relevant supports and resources to guide their son or daughter's journey across the lifespan.
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail:; Web site:
Publication Type: Journal Articles; Reports - Research
Education Level: Postsecondary Education
Audience: N/A
Language: English
Sponsor: Administration on Intellectual and Developmental Disabilities (AIDD) (DHHS/ACL); National Center for Advancing Translational Sciences (NCATS) (DHHS/NIH)
Authoring Institution: N/A
Identifiers - Location: Tennessee
Grant or Contract Numbers: 90DN0294; UL1TR000445