ERIC Number: EJ1144850
Record Type: Journal
Publication Date: 2017-Jul
Abstractor: As Provided
Reference Count: 75
Lessons Learned: Engaging Culturally Diverse Families in Neurodevelopmental Disorders Intervention Research
Ratto, Allison B.; Anthony, Bruno J.; Pugliese, Cara; Mendez, Rocio; Safer-Lichtenstein, Jonathan; Dudley, Katerina M.; Kahn, Nicole F.; Kenworthy, Lauren; Biel, Matthew; Martucci, Jillian L.; Anthony, Laura G.
Autism: The International Journal of Research and Practice, v21 n5 p622-634 Jul 2017
Low-income and ethnic minority families continue to face critical disparities in access to diagnostic and treatment services for neurodevelopmental conditions, such as autism spectrum disorder and attention deficit hyperactivity disorder. Despite the growing cultural diversity of the United States, ethnic minority children and families continue to be substantially underrepresented across research on neurodevelopmental disorders, and there is a particularly concerning lack of research on the treatment of these conditions in low-income and ethnic minority communities. Of note, there are currently no published studies on adapting autism spectrum disorder treatment for low-income Latino communities and relatively few studies documenting adapted treatments for children with attention deficit hyperactivity disorder in these communities. This article describes methodological considerations and adaptations made to research procedures using a Diffusion of Innovation framework in order to effectively recruit and engage low-income, ethnic minority, particularly Latino, families of children with neurodevelopmental disorders, in a comparative effectiveness trial of two school-based interventions for executive dysfunction.
Descriptors: Low Income Groups, Minority Groups, At Risk Persons, Access to Health Care, Neurological Impairments, Autism, Pervasive Developmental Disorders, Attention Deficit Hyperactivity Disorder, Hispanic Americans, Innovation, Recruitment, Participation, Intervention, Family Needs, Spanish Speaking, Translation, Barriers, School Role, Knowledge Level, Cultural Relevance, Individual Characteristics
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Sponsor: National Institutes of Health (DHHS)
Authoring Institution: N/A
Identifiers - Location: District of Columbia
Grant or Contract Numbers: IDDRCP30HD040677|T32HD04638801A2