Download full text
Download full text
ERIC Number: EJ1135695
Record Type: Journal
Publication Date: 2012
Abstractor: As Provided
Perspectives of Parents Who Have a Child Diagnosed with an Autism Spectrum Disorder
Kalash, Lori A.; Olson, Myrna R.
Journal of the American Academy of Special Education Professionals, p93-121 Spr-Sum 2012
The purpose of this study was to understand the experiences and perceptions of parents having a child diagnosed with an autism spectrum disorder (ASD). Interviews with 12 parents were audio-recorded and subsequently analyzed to reveal the following themes: (1) Diagnosis of an autism spectrum disorder was not confirmed until years and/or several doctor visits after parents identified concerns; (2) Because they were given little guidance by medical professionals, parents took the initiative to educate themselves about their child's disorder and optional therapies; (3) Lack of daycare options and the cost of interventions were stressors for these families; (4) Parents were torn between their child with an ASD and other family members and friends; (5) Anxiety about the future was prevalent; (6) Parents felt judged by others when with their child in public; and (7) Many parents felt that vaccinations may have played a role in their child's ASD.
Descriptors: Pervasive Developmental Disorders, Parent Attitudes, Autism, Clinical Diagnosis, Phenomenology, Immunization Programs, Parent Child Relationship, Asperger Syndrome, Disability Identification, Special Education, Qualitative Research, Interviews, Observation
American Academy of Special Education Professionals. 3642 East Sunnydale Drive, Chandler Heights, AZ 85142. Tel: 800-754-4421; Fax: 800-424-0371; e-mail: firstname.lastname@example.org; Web site: http://www.aasep.org
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A