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ERIC Number: EJ1128594
Record Type: Journal
Publication Date: 2017-Mar
Pages: 12
Abstractor: As Provided
ISSN: ISSN-1360-2322
Perceptions and Discourses Relating to Genetic Testing: Interviews with People with Down Syndrome
Barter, Barbara; Hastings, Richard Patrick; Williams, Rebecca; Huws, Jaci C.
Journal of Applied Research in Intellectual Disabilities, v30 n2 p395-406 Mar 2017
Background: The perceptions of individuals with Down syndrome are conspicuously absent in discussions about the use of prenatal testing. Method: Eight individuals with Down syndrome were interviewed about their views and experience of the topic of prenatal testing. Results: Interpretative phenomenological analysis revealed two major themes with subthemes: (1) a devalued condition and a valued life and (2) a question of "want"? Foucauldian discourse analysis highlighted two main discursive practices: (i) social deviance and (ii) tragedy and catastrophe of the birth of a baby with Down syndrome. Conclusions: The findings suggest that individuals with intellectual disabilities can make a valuable contribution to discussions surrounding the use of prenatal testing. Implications for clinical practice include the use of information about Down syndrome given to prospective parents, and the possible psychological impact of prenatal testing practices on individuals with Down syndrome.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A