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ERIC Number: EJ1122424
Record Type: Journal
Publication Date: 2017-Jan
Pages: 10
Abstractor: As Provided
ISSN: ISSN-1360-2322
On My Own: A Qualitative Phenomenological Study of Mothers of Young Children with Autism Spectrum Disorder in Taiwan
Hsu, Yu-Chien; Tsai, Shu-Ling; Hsieh, Mei-Hui; Jenks, Michael S.; Tsai, Chang-Hsiung; Hsu, Min-Tao
Journal of Applied Research in Intellectual Disabilities, v30 n1 p147-156 Jan 2017
Background: There has been a dramatic increase in autism around the world. However, little is known about the impact of the Taiwanese primogeniture system on mothers of children with ASD. Greater knowledge is needed to understand the life experiences of Taiwanese mothers with ASD children when a healthy male descendent is expected. Materials and Methods: Research follows the hermeneutic phenomenological approach with in-depth interviews and participant observation (Agar, "Speaking of Ethnography." Sage, California, 1986). The researchers collected and analysed stories from seven mothers who are the major caregivers of their school-aged autistic children. Results: The data revealed the following themes that represented the mothers' experiences: taking the blame, my world was turned upside down, a child-centred life and two lives as one. Conclusions: The findings provide a deeper understanding of common expectations of, and behaviours directed towards, Taiwanese mothers of children with autism. This offers healthcare professionals ways of reconceptualizing therapeutic practice, thus benefitting these mothers.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Taiwan
Grant or Contract Numbers: N/A