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ERIC Number: EJ1122417
Record Type: Journal
Publication Date: 2017-Jan
Pages: 13
Abstractor: As Provided
ISSN: ISSN-1360-2322
Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities
Pryce, Laura; Tweed, Alison; Hilton, Amanda; Priest, Helena M.
Journal of Applied Research in Intellectual Disabilities, v30 n1 p84-96 Jan 2017
Background: Improved life expectancy means that more adults with intellectual disabilities are now living with ageing parents. This study explored older families' perceptions of the future. Methods: Semi-structured interviews were conducted with nine older parents and three adults with intellectual disabilities and analysed to produce an explanatory thematic framework. Results: "Tolerating uncertainty" was the major theme in participants' attempts to manage anxieties about the future, encompassing sub-themes of "accepting the parenting role", "facing challenges", "being supported/isolated", "positive meaning making", "re-evaluating as time moves on" and "managing future thinking". Some participants expressed preferences for their future which were in contrast to their parents' views, and provide a unique perspective that has often been neglected in prior research. Conclusions: This research has found commonalities in how families tolerate the uncertainty of the future, but also unique differences that require tailored interventions and prospective action by services.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A