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ERIC Number: EJ1120559
Record Type: Journal
Publication Date: 2016
Pages: 15
Abstractor: As Provided
ISSN: ISSN-2168-6653
Falling through the Cracks: Caregivers' Experiences with Choice of Providers
Neely-Barnes, Susan; Zanskas, Stephen; Lustig, Daniel; Duerr, Rachel; Zhao, Minna
Rehabilitation Research, Policy, and Education, v30 n4 p338-352 2016
Purpose: We sought to understand the experiences of family members and direct care staff of adults with intellectual and developmental disabilities in a private pay day program focused on socialization and recreational skills. Method: Two focus groups were held with parents/caregivers and one with staff. Using an interpretive method, two investigators independently coded the transcripts and arrived at themes. Results: Themes identified included transition, lack of information, lack of resources, caregiver needs, independence, employment, and education. Conclusion: Families and staff experienced frustration with service fragmentation/access to alternative programming. Families and staff wanted opportunities for employment and independent living programming but lacked resources. Implications for practice and policy are discussed
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A