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ERIC Number: EJ1088307
Record Type: Journal
Publication Date: 2016-Feb
Pages: 6
Abstractor: As Provided
ISSN: ISSN-0162-3257
Brief Report: Recruitment and Retention of Minority Children for Autism Research
Zamora, Irina; Williams, Marian E.; Higareda, Marcia; Wheeler, Barbara Y.; Levitt, Pat
Journal of Autism and Developmental Disorders, v46 n2 p698-703 Feb 2016
Given the underrepresentation of ethnic minorities in health research (Heiat et al. in "Arch Int Med" 162(15):1-17, 2002; Kelly et al. in "J Nat Med Assoc" 97:777-783, 2005; United States Department of Health and Human Services. "Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research.", 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5-17 years, with ASD; 82.5% of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A