ERIC Number: EJ1087802
Record Type: Journal
Publication Date: 2016-Jan
Abstractor: As Provided
Reference Count: 40
Caregiving Experience for Children with Intellectual Disabilities among Parents in a Developing Area in China
Yang, Xue; Byrne, Victoria; Chiu, Marcus Y. L.
Journal of Applied Research in Intellectual Disabilities, v29 n1 p46-57 Jan 2016
Background: By utilizing grounded theory methodology, this study attempted to fill a gap whereby little research explored family caregiving perspectives in China where public support is insufficient and familial responsibility is highly valued. Methods: Data were collected through the qualitative methods of interviews and observations among a purposive sample of 15 parents of children with intellectual disabilities in central China. Results: The central idea emerging from the data encompassed five broad categories of caregiving experiences: (i) unavoidable caregiving responsibility and (ii) uncertain future as the greatest worries which are the perception towards the recipient; (iii) compromising quality of life and (iv) positive roles of caregiving tasks which focus on the self; and (v) community support which is the perceived support from the external system. Conclusion: A recursive relationship existed among these categories. Chinese culture and traditional beliefs dominated throughout these issues. The implications and limitations of this study were discussed.
Descriptors: Foreign Countries, Grounded Theory, Child Rearing, Family Role, Qualitative Research, Interviews, Observation, Intellectual Disability, Children, Parent Responsibility, Parent Attitudes, Quality of Life, Social Support Groups, Cultural Influences
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: China