ERIC Number: EJ1073012
Record Type: Journal
Publication Date: 2015-Sep
Abstractor: As Provided
Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome
Cianfaglione, Rina; Hastings, Richard P.; Felce, David; Clarke, Angus; Kerr, Michael P.
Journal of Autism and Developmental Disorders, v45 n9 p2939-2946 Sep 2015
Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters' behavioral phenotype, current health, and behavior problems, and their own and a sibling's well-being. Mothers reported increased anxiety but similar levels of depression when compared to a normative sample. Across all problem domains on the Strengths and Difficulties Questionnaire, child and adolescent siblings (n = 39) were reported by mothers to have fewer difficulties than a normative sample. The severity of their daughters' RTT behavioral phenotype predicted increased anxiety and stress for mothers. Increased RTT daughters' current health problems predicted more maternal perceptions of positive gain.
Descriptors: Well Being, Mothers, Daughters, Genetic Disorders, Questionnaires, Surveys, Behavior Problems, Physical Health, Siblings, Anxiety, Depression (Psychology), Comparative Analysis, Children, Adolescents, Severity (of Disability), Predictor Variables, Mental Health
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Assessments and Surveys: Strengths and Difficulties Questionnaire
Grant or Contract Numbers: N/A