ERIC Number: EJ1069668
Record Type: Journal
Publication Date: 2015-Aug
Abstractor: As Provided
Reference Count: 38
Cultural Adaptation and Translation of Outreach Materials on Autism Spectrum Disorder
Grinker, Roy R.; Kang-Yi, Christina D.; Ahmann, Chloe; Beidas, Rinad S.; Lagman, Adrienne; Mandell, David S.
Journal of Autism and Developmental Disorders, v45 n8 p2329-2336 Aug 2015
In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder (ASD) diagnosis, assessment, and interventions. The goal of this study is to describe a methodology for future cross-cultural adaptations and translations of outreach materials on ASD, using the Autism Speaks First 100 Days Kit as an exemplar. The research involved two stages of qualitative interviews: unstructured individual and group interviews with 19 Korean child health and education professionals in Queens, NY, followed by structured cultural consensus modeling interviews with 23 Korean mothers, with and without children with ASD, in Queens, NY and the greater Washington, DC area. We conclude that a systematic approach to cultural translation of outreach materials is feasible. Cultural consensus modeling yielded information about numerous barriers to care, had a demonstrable effect on the translation of the kit, and was efficient when employed with coherent segments of a relatively homogeneous population and focused on a single condition.
Descriptors: Translation, Autism, Pervasive Developmental Disorders, Cultural Awareness, Clinical Diagnosis, Interviews, Korean Americans, Mothers, Parent Attitudes, Parent Materials, Barriers, Intervention, Information Sources, Health Services
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: District of Columbia; New York