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ERIC Number: EJ1065568
Record Type: Journal
Publication Date: 2015-Jul
Pages: 11
Abstractor: As Provided
ISSN: ISSN-1360-2322
"Recognized, Valued and Supported"? The Experiences of Adult Siblings of People with Autism Plus Learning Disability
Tozer, Rosemary; Atkin, Karl
Journal of Applied Research in Intellectual Disabilities, v28 n4 p341-351 Jul 2015
Background: The potential of adult siblings to offer long-term support to a brother or sister with autism is rarely realized. To understand this, our study explores the expectations of social care among adult siblings. Method: Using qualitative interviews, we spoke to 21 adult siblings about their family relationships and engagement with service delivery, met with 12 of their siblings with autism and talked to 12 social care staff. Results: Siblings, although reflecting on the difficulties of growing up with someone who had autism, expressed a commitment towards their brother or sister. Most wanted involvement in their care. While some siblings described positive relationships with services, many felt marginalized. Practitioners largely confirmed their perceptions, while offering a justification for why they struggled to engage with adult siblings. Conclusion: By understanding the way relationships between siblings change over time, adult siblings' contribution to the lives of their disabled brother or sister can be better supported.
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Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A