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ERIC Number: EJ1063371
Record Type: Journal
Publication Date: 2015
Pages: 26
Abstractor: As Provided
Reference Count: N/A
ISSN: ISSN-0896-3746
An Integrated Literature Review of the Knowledge Needs of Parents with Children with Special Health Care Needs and of Instruments to Assess These Needs
Adler, Kristin; Salanterä, Sanna; Leino­-Kilpi, Helena; Grädel, Barbara
Infants and Young Children, v28 n1 p46-71 Jan-Mar 2015
The purpose of this integrative (including both quantitative and qualitative studies) literature review was to identify knowledge needs of parents of a child with special health care needs and to evaluate instruments to assess these needs. The content analysis of 48 publications revealed a vast amount of knowledge needs that were categorized into 9 categories: (a) knowledge about the condition or illness, (b) support, (c) treatment, (d) everyday care of the child, (f) the future, (g) how to explain the illness to others, (h) equipment, (i) organizational issues, and (j) the effect of the illness on the family. Several instruments to assess these needs are described. There is evidence that parents have various knowledge needs at different times of their children's life and it is important that these needs are assessed systematically. Professionals have many possibilities to provide information and education as it is needed by these parents.
Lippincott Williams & Wilkins. Available from: Wolters Kluwer. 351 West Camden Street, Baltimore, MD 21201. Tel: 800-638-3030; e-mail:; Web site:
Publication Type: Journal Articles; Information Analyses; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A