ERIC Number: EJ1018870
Record Type: Journal
Publication Date: 2013
Pages: 4
Abstractor: ERIC
ISBN: N/A
ISSN: ISSN-1544-6751
EISSN: N/A
Creating Community: Balancing the Personal and Professional
Stevens, Connie
Odyssey: New Directions in Deaf Education, v14 p56-59 2013
In this article, Connie Stevens describes her life as a mother to a child with Down Syndrome who at seven months of age was diagnosed with profound hearing loss. At the time there was not much support for families like hers; however a movement was developing. With the help of dedicated professionals and Wisconsin mothers and fathers, a wide and diverse support system blossomed. Stevens now works for the state, dividing her time between two agencies that have collaboratively created a Hands & Voices Guide By Your Side Program for Wisconsin, a program that offers parent-to-parent support from screening through intervention. With the Department of Health and Wisconsin Sound Beginnings, she and her team help ensure that all babies born in Wisconsin have their hearing checked and, if necessary, receive timely services. With the Wisconsin Department of Public Instruction's Educational Services Program for the Deaf and Hard of Hearing Outreach Program, she is also one of 20 or so parent guides throughout the state. As a parent guide she meets with families in their homes--either shortly after diagnosis or when the family is ready to participate--to provide parents with the opportunity to establish a supportive relationship with another parent of a child who is deaf, hard of hearing, deaf-blind, or deaf with additional disabilities. Parent guides can share the unique needs of infants, children, and teenagers who have hearing loss. They are trained to offer unbiased information and support, as well as to connect families with resources (locally, regionally, statewide, and nationally), so families have the information and knowledge they need to make informed decisions on behalf of their child.
Descriptors: Deafness, Down Syndrome, Intervention, Public Agencies, Screening Tests, Interpersonal Relationship, Social Support Groups
Laurent Clerc National Deaf Education Center. Gallaudet University, 800 Florida Avenue NE, KS 3600, Washington, DC 20002. Tel: 800-526-9105; Tel: 202-651-5340; Fax: 202-651-5708; e-mail: odyssey@gallaudet.edu; Web site: http://clerccenter.gallaudet.edu
Publication Type: Reports - Descriptive; Journal Articles
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: Wisconsin
Grant or Contract Numbers: N/A