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ERIC Number: EJ1018235
Record Type: Journal
Publication Date: 2014-Jan
Pages: 16
Abstractor: As Provided
ISSN: ISSN-1944-7515
Modeling Family Adaptation to Fragile X Syndrome
Raspa, Melissa; Bailey, Donald, Jr.; Bann, Carla; Bishop, Ellen
American Journal on Intellectual and Developmental Disabilities, v119 n1 p33-48 Jan 2014
Using data from a survey of 1,099 families who have a child with Fragile X syndrome, we examined adaptation across 7 dimensions of family life: parenting knowledge, social support, social life, financial impact, well-being, quality of life, and overall impact. Results illustrate that although families report a high quality of life, they struggle with areas such as social support, social life, and parenting knowledge. Path analysis revealed that child and family factors play a role in adaptation, but family resources and social supports moderated their effect on quality of life, well-being, and overall impact. The interrelationship among multiple aspects of family life should be examined to improve family resiliency.
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail:; Web site:
Publication Type: Reports - Research; Journal Articles
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A