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ERIC Number: EJ1015880
Record Type: Journal
Publication Date: 2013-Oct
Pages: 16
Abstractor: As Provided
ISSN: ISSN-1934-9556
Issues Concerning Self-Report Data and Population-Based Data Sets Involving People with Intellectual Disabilities
Emerson, Eric; Felce, David; Stancliffe, Roger J.
Intellectual and Developmental Disabilities, v51 n5 p333-348 Oct 2013
This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report and proxy-report data and (b) analysis of population-based data sets. Some people with intellectual disabilities have difficulties with self-reporting due to problems of understanding and communication. However, there are serious doubts about the validity of proxy data for subjective issues. One important challenge with secondary analysis of population-based data sets is the difficulty of accurately identifying survey participants with intellectual disabilities. In both areas examined, it is important to recognize these constraints when interpreting research based on such data.
American Association on Intellectual and Developmental Disabilities. P.O. Box 7065, Lawrence, KS 66044-7065. Tel: 785-843-1235; Fax: 785-843-1274; e-mail:; Web site:
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A