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ERIC Number: ED546279
Record Type: Non-Journal
Publication Date: 2012
Pages: 314
Abstractor: As Provided
Reference Count: N/A
ISBN: 978-1-2676-1713-2
ISSN: N/A
Parents' Perceptions of the Supports Received for Their Children's Problem Behaviors
Schofield, Dean Alexander
ProQuest LLC, Ph.D. Dissertation, University of Virginia
Individuals with significant intellectual disabilities (ID) are more likely to engage in problem behaviors than are people with milder disabilities or with no disability. It is widely considered that behavior problems serve a communicative function for individuals with severe ID and limited communication skills. Among people with significant ID, the problem behaviors often become highly entrenched because these behaviors serve a functional purpose for the individual. Problem behaviors are also inadvertently or directly maintained by care-givers who seek to reduce the behavior without understanding the function they serve for the individual. Severe and chronic problem behaviors often interfere with a person's ability to learn, to participate in community events, and to enjoy a satisfactory quality of life. The individual's problem behaviors also affect family members and care-providers in similar ways. For both the family and the individual, there were disruptions in regular routines, social isolation, and reduced quality of life. This dissertation study involved six parents representing five different families of children with ID and problem behaviors whose ages ranged from 7 to 16-years-old. Data collection included semi-structured face-to-face interviews and follow-up interviews conducted either in person, by phone, or by email. The interview data were examined to determine each parent's perception of the behavioral support their child received; whether the parent was satisfied or dissatisfied with the behavioral support; and how well the support matched with their parental and familial values, skills, and needs. Across-case results indicated that, parents' perceptions generated four themes: (a) the children exhibited frequent challenging behaviors, (b) the parents desired support from trained professionals, (c) the parents reported feeling let down by support providers, and (d) the parents felt isolated, needing to take matters into their own hands to get behavioral supports that met their needs. Implications for ways to provide behavioral support to families with members who have ID and problem behaviors are discussed. Suggestions for personnel who support families in similar circumstances are also provided. [The dissertation citations contained here are published with the permission of ProQuest LLC. Further reproduction is prohibited without permission. Copies of dissertations may be obtained by Telephone (800) 1-800-521-0600. Web page: http://www.proquest.com/en-US/products/dissertations/individuals.shtml.]
ProQuest LLC. 789 East Eisenhower Parkway, P.O. Box 1346, Ann Arbor, MI 48106. Tel: 800-521-0600; Web site: http://www.proquest.com/en-US/products/dissertations/individuals.shtml
Publication Type: Dissertations/Theses - Doctoral Dissertations
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A