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ERIC Number: ED545213
Record Type: Non-Journal
Publication Date: 2013-Sep
Pages: 33
Abstractor: ERIC
Reference Count: 4
The 2012 National Child Count of Children and Youth Who Are Deaf-Blind
National Consortium on Deaf-Blindness
The National Child Count of Children and Youth who are Deaf-Blind is the first and longest running registry and knowledge base of children who are deaf-blind in the world. Begun in 1986 on behalf of the U.S. Department of Education, it represents a nearly thirty year collaborative effort between the National Consortium on Deaf-Blindness (NCDB), its predecessors, and each state deaf-blind project throughout the country, as well as those projects funded in the Pacific Trust territories--the Virgin Islands and Puerto Rico. Initially requested by the Department of Education as an examination of the discrepancy between the state/multi-state child counts and OSEP's annual December 1 counts, the child count has continued based on the work scope of the deaf-blind program national center technical assistance and dissemination centers and state/multi-state projects which have been federally funded in ensuing years. It has been collaboratively designed, implemented and revised to serve as the common vehicle to meet federal grant requirements for both the state/multi-state and national technical assistance projects, as well as serving as a common data collection and reporting mechanism for use across the country. The child count is conducted each year to supplement OSEP's Federal Part C and Part B Child Counts (Special Education Child Count), which include children as deaf-blind only when deaf-blindness is their single disability. Some of the emerging trends identified in the 2012 Deaf-Blind Child Count include: (1) The overall count for the 2012 collection of deaf-blind child count data has increased by 138 as new individuals continue to be identified by State Deaf-Blind Projects; (2) The prevalence of CHARGE Syndrome continues to increase significantly. In 2012 there were 848 children and youth identified as having CHARGE Syndrome. The identified prevalence of Usher Syndrome reached a peak in 2007 and has decreased over the past three years; (3) The percentage of children/youth identified as needing further vision testing has decreased from 15.6% to 6.4%; and (4) The percentage of children/youth identified as needing further hearing testing has decreased from 20.4% to 7.2%. [For the 2011 Dead-Blind Child Count, see ED545212.]
National Consortium on Deaf-Blindness. Teaching Research Institute Western Oregon University 345 North Monmouth Avenue, Monmouth, OR 97361. Tel: 800-438-9376; Fax: 503-838-8150; e-mail:; Web site:
Publication Type: Numerical/Quantitative Data; Reports - Descriptive
Education Level: Elementary Secondary Education; Early Childhood Education
Audience: N/A
Language: English
Sponsor: Department of Education (ED)
Authoring Institution: National Consortium on Deaf-Blindness (NCDB)
Identifiers - Laws, Policies, & Programs: Individuals with Disabilities Education Act