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ERIC Number: ED545210
Record Type: Non-Journal
Publication Date: 2010-Oct
Pages: 33
Abstractor: ERIC
Reference Count: 4
The 2009 National Child Count of Children and Youth Who Are Deaf-Blind
National Consortium on Deaf-Blindness
The National Child Count of Children and Youth who are Deaf-Blind is the first and longest running registry and knowledge base of children who are deaf-blind in the world. It represents a 25 year collaborative effort between NCDB, its predecessors and each state deaf-blind project throughout the country, as well as those projects funded in the Pacific Trust territories--the Virgin Islands and Puerto Rico. It has been collaboratively designed and implemented as the common vehicle to meet federal grant requirements for both the state/multi-state and national technical assistance projects and serves as a common data collection and reporting mechanism for use across the country. Consistent with the priorities under which NCDB, its predecessors, and the state/multi-state projects are funded, this national child count is used to identify national and state technical assistance needs for children and youth who are deaf-blind, their families and the service providers and systems which serve them (Killoran, 2007). The child count is conducted on December 1st of each year to supplement OSEP's federal Part C and Part B Child Counts, which include children as deaf-blind only when deaf-blindness is their single disability. Some of the emerging trends identified in the 2009 Deaf-Blind Child Count include: (1) The overall numbers of children identified as deaf-blind has decreased over the past several years as projects continue to "clean" their databases. This trend is consistent with the time period of 1996-1998 when similar efforts were undertaken; (2) The prevalence of CHARGE association has increased significantly over the past five years. The prevalence of Usher Syndrome has decreased over the past five years; (3) The percentage of children/youth identified as needing further vision testing has decreased from 15.6% to 7.3%; and (4) The percentage of children/youth identified as needing further hearing testing has decreased from 20.4% to 8.9%. [For the 2008 Deaf-Blind Child Count, see ED545221.]
National Consortium on Deaf-Blindness. Teaching Research Institute Western Oregon University 345 North Monmouth Avenue, Monmouth, OR 97361. Tel: 800-438-9376; Fax: 503-838-8150; e-mail:; Web site:
Publication Type: Numerical/Quantitative Data; Reports - Descriptive
Education Level: Early Childhood Education; Elementary Secondary Education
Audience: N/A
Language: English
Sponsor: Office of Special Education Programs (ED/OSERS)
Authoring Institution: National Consortium on Deaf-Blindness (NCDB)
Identifiers - Laws, Policies, & Programs: Individuals with Disabilities Education Act; Individuals with Disabilities Education Act Amendments 1997; Individuals with Disabilities Education Improvement Act 2004