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ERIC Number: ED541890
Record Type: Non-Journal
Publication Date: 2012
Pages: 282
Abstractor: As Provided
Reference Count: 0
ISBN: ISBN-978-1-2673-9679-2
Hear Our Voices: Meeting the New Challenges of Adolescents with Cancer and Their Caregiver
Nelson, Jeanne M.
ProQuest LLC, Ed.D. Dissertation, University of Houston-Clear Lake
The diagnosis and treatment of cancer in adolescence requires that adolescents and their caregivers learn to transition and adjust to the challenges associated with cancer. The aim of this phenomenological study was to generate a detailed examination of the experiences of four caregivers and their adolescent children, 11 to 18 years of age, undergoing treatment for cancer as they transitioned between the healthcare and education systems. This study sought to understand the meaning of the lived experiences in order to provide a clearer picture of the nature and scope of the experience. Schools are an important part of this change process; they are no longer just a place that students will perhaps return to if they become healthy enough. Practitioners need to understand the meaning of the experiences from the adolescents', as well as their caregivers' perspective, in an attempt to improve the unique needs of this population, provide appropriate interventions, and improve educational programs in order to prevent or relieve distress in these patients and their families. The findings in this study have global implications for the development of policies and procedures in the medical as well as the education field for providing the best support for all students including those adolescents with cancer (AWC). Through the formation of the Students with Cancer Advisory Team (SCAT), this community of individuals can help prepare the AWC and their caregivers as they transition between the diagnosis, treatment, and re-entry back into the school setting. This researcher encourages educators and the medical field to coordinate and collaborate with other education and social service agencies to better serve the AWC and their families by providing a seamless delivery of services facilitating them in leading a fulfilling life, despite the psychological, physical, and social effects of cancer. [The dissertation citations contained here are published with the permission of ProQuest LLC. Further reproduction is prohibited without permission. Copies of dissertations may be obtained by Telephone (800) 1-800-521-0600. Web page:]
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Publication Type: Dissertations/Theses - Doctoral Dissertations
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A