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ERIC Number: ED525229
Record Type: Non-Journal
Publication Date: 2011-Jun
Pages: 16
Abstractor: ERIC
Reference Count: 0
Still in the Shadows with Their Future Uncertain. A Report on Family and Individual Needs for Disability Supports (FINDS), 2011. Summary of Key Findings and a Call to Action
Anderson, Lynda; Larson, Sheryl A.; Wuorio, Allise; Lakin, K. Charlie
The Arc
In light of the fiftieth anniversary of President Kennedy's call to action back in 1961, The Arc wanted to know if people with intellectual and developmental disabilities (I/DD) are still living in the shadows. So, they launched a national online survey, Family and Individual Needs for Disability Supports (FINDS), from July 22, 2010 to October 31, 2010 to find out. The survey was widely disseminated through a variety of groups, including: the Association of University Centers on Disabilities, the American Association on Intellectual and Developmental Disabilities, the American Network of Community Options and Resources, the National Association of Councils on Developmental Disabilities, Self-Advocates Becoming Empowered, the National Council on Independent Living, Best Buddies, Easter Seals, the Autism Society of America and state and local chapters of The Arc. Families from all 50 states and DC completed surveys. Nearly 5,000 caregivers responded (4,962). The vast majority of caregiver respondents were family members (95%) who are living with their family member with disabilities (75%), and who are female (89%), Caucasian (90%) and married (75%). Additional detail regarding respondents is available in the FINDS Technical Report. The results are representative of the people who heard about the survey and responded and may not be representative of all people with disabilities and their families. This paper presents the findings from the survey. (Contains 9 endnotes.) [Funding for this paper was provided by Ecology and Environment, Inc.]
The Arc. 1660 L Street NW Suite 301, Washington, D.C. 20036. Tel: 800-433-5255; Tel: 202-534-3700; Fax: 202-534-3731; e-mail:; Web site:
Publication Type: Numerical/Quantitative Data; Reports - Research
Education Level: Elementary Secondary Education
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: The Arc