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ERIC Number: ED509368
Record Type: Non-Journal
Publication Date: 2009-Jan-26
Pages: 37
Abstractor: ERIC
Reference Count: 41
2009 Strategic Plan for Autism Spectrum Disorder Research. NIH Publication No. 09-7465
Interagency Autism Coordinating Committee
In response to the heightened societal concern over autism spectrum disorder (ASD), Congress passed the Combating Autism Act (CAA) of 2006 (P.L. 109-416). Through this Act, Congress intended to rapidly increase, accelerate the pace and improve coordination of scientific discovery in ASD research. The CAA requires the Interagency Autism Coordinating Committee (IACC) to develop and annually update a Strategic Plan for ASD research, including proposed budgetary requirements. Driven by both the sense of urgency and a spirit of collaboration, the IACC developed this initial Strategic Plan for ASD Research, which is focused on the unique needs of people with ASD and their families, as well as other consumers of these efforts. The Strategic Plan was developed through extensive and iterative input from members of the public, academic, and advocacy communities. In developing the Strategic Plan, the IACC: (1) Identified recent investments and accomplishments in ASD research; (2) Assessed the strengths, weaknesses, opportunities, and gaps in the ASD research enterprise; (3) Gathered ideas for research opportunities from a diverse group of stakeholders; (4) Convened four scientific workshops and solicited input from the public and non-government research sponsors to identify research opportunities; (5) Convened expert workgroups to recommend research objectives and strategies; and (6) Convened programmatic and agency experts to develop and recommend professional judgment budget estimates for each objective in the Plan. The Strategic Plan incorporates this array of input in two main sections. First, the foundation of the Plan--Vision, Mission, Core Values, and Crosscutting Themes--is described. The remainder of the Plan is organized around six critical questions asked by people and families living with ASD: (I) When should I be concerned?; (II) How can I understand what is happening?; (III) What caused this to happen and can this be prevented?; (IV) Which treatments and intervention will help?; (V) Where can I turn for services?; and (VI) What does the future hold? Each question is followed by a brief discussion of what is currently known and needed from research, an aspirational goal, research opportunities and objectives. This six-question framework was chosen by the IACC to emphasize the need for consumer-focused research that addresses the most pressing questions of people and families living with ASD, and to link these questions to specific research efforts.
Interagency Autism Coordinating Committee. US Department of Health and Human Services, 200 Independence Avenue SW, Washington, DC 20201. e-mail:; Web site:
Publication Type: Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A