ERIC Number: ED450495
Record Type: Non-Journal
Publication Date: 1998
Reference Count: N/A
Teach and Be Taught: A Guide to Teaching Students with Batten Disease.
Bills, Wendy; Johnston, Lance W.; Wilhelm, Robert; Graham, Leslie
This guide provides information on Batten Disease to assist in planning a quality educational program for the student with the disease. Because Batten Disease, or neuronal ceroid lipofuscinosis, causes the death of brain cells, students with the disease are described as suffering from mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, these children become blind, bedridden, and unable communicate. The disease is always fatal, typically by the late teens or twenties. The guide discusses the following: (1) history of the condition; (2) types of the disease; (3) etiology; (4) diagnosis; (5) characteristics of students; (6) visual impairments and suggested interventions; (7) muscular control and strategies for supporting fine and gross motor skills; (8) physical therapy and Batten Disease; (9) social interaction; (10) cognitive impairments and classroom strategies; (11) speech/language impairments and suggestions for promoting speech; (12) communication and using daily calendar boxes to enable the student to plan their day; (13) Individualized Education Program goals; and (14) student rights under the Individuals with Disabilities Education Act of 1997. The guide closes with some notes for the school nurse. (CR)
Descriptors: Chronic Illness, Classroom Techniques, Communication Disorders, Educational Legislation, Elementary Secondary Education, Etiology, Federal Legislation, Individualized Education Programs, Mental Retardation, Neurological Impairments, Physical Therapy, Seizures, Speech Impairments, Student Characteristics, Student Educational Objectives, Student Rights, Symptoms (Individual Disorders), Teaching Methods, Visual Impairments
Batten Disease Support and Research Association, 120 Humphries Dr., Suite 2, Reynoldsburg, OH 43068.
Publication Type: Guides - Non-Classroom
Education Level: N/A
Audience: Practitioners; Teachers
Authoring Institution: Batten Disease Support and Research Association, Columbus, OH.
Identifiers - Laws, Policies, & Programs: Individuals with Disabilities Education Act Amendments 1997