ERIC Number: ED410492
Record Type: Non-Journal
Publication Date: 1997-Apr
Reference Count: N/A
The Educational and Psychological Interventions for Children and Adolescents with Marfan Syndrome.
Stebbins, Molly S.; McIntosh, David E.
Marfan's syndrome is an autosomal dominant chromosomal disorder of connective tissue which may cause major abnormalities in the musculoskeletal, ocular (pertaining to the eye), and cardiovascular systems of the body. A description of this disorder is presented in this paper. It affects approximately .03 to .05% of the population; approximately 40,000 persons in the United States are currently diagnosed with Marfan's syndrome. Although little research has been conducted exploring the educational and psychological features of the co-presence of other disorders, such as learning disabilities or attention deficit hyperactivity disorder, one study identified 13% of Marfan syndrome sufferers as having a learning disability and 17% as having attention deficit disorders. Although these results may suggest a higher incidence of learning disabilities and attention deficit disorders among individuals with Marfan Syndrome compared to the general population, the author recommended caution in generalizing the results of the entire Marfan population given the small size of their sample and the uncertainty of the incidence of learning disabilities among the general population. Developmental impacts of the syndrome are also poorly understood, although some tentative conclusions can be advanced. Some of the psychoeducational implications are explored here, including school behavior and what steps school psychologists can take to help these children. (RJM)
Publication Type: Information Analyses; Speeches/Meeting Papers
Education Level: N/A
Authoring Institution: N/A