ERIC Number: ED407820
Record Type: Non-Journal
Publication Date: 1997
Reference Count: N/A
Brave New Partnerships: Children with Disabilities, Families & Managed Care.
PACER Center, Inc., Minneapolis, MN.; Minnesota Univ., Minneapolis. Center for Children with Chronic Illness and Disability.; Group Health Foundation, Washington, DC.
This report discusses the results of a study that assessed the current system of health care for children with chronic conditions in a staff-model health maintenance organization (HealthPartners) setting. The project interviewed 35 parents of children with chronic conditions, completed a financial analysis of 410 children within eight categories of chronic conditions, and conducted a survey of HealthPartners physicians. The data indicate: (1) most families are satisfied with their child's pediatrician and overall health care; (2) while families appreciate the convenience of having a primary care clinic at the site where most medical care occurs, they report their pediatrician often does not have the time and knowledge to act as coordinator for the child's non-medical needs; (3) case management is often mentioned as a desired service by families and physicians; and (4) the majority of children receive physical therapy, occupational therapy, and speech/language services from school, usually the school pays the costs for these services, and they are neither coordinated with nor reimbursed by HealthPartners. Recommendations are made for developing an integrated service system that promotes the overall health and well-being of children with chronic illness and disability, their families, and their communities. (CR)
Descriptors: Children, Chronic Illness, Cooperative Programs, Disabilities, Elementary Secondary Education, Financial Support, Health Maintenance Organizations, Health Services, Interviews, Parent Attitudes, Participant Satisfaction, Program Effectiveness, School Responsibility, Youth
Peggy Mann Rinehart, Division of General Pediatrics and Adolescent Health, University of Minnesota, Box 721, 420 Delaware Street, S.E., Minneapolis, MN 55455.
Publication Type: Reports - Research
Education Level: N/A
Sponsor: Health Resources Administration (DHHS/PHS), Hyattsville, MD.; Robert Wood Johnson Foundation, Princeton, NJ.; National Inst. on Disability and Rehabilitation Research (ED/OSERS), Washington, DC.
Authoring Institution: PACER Center, Inc., Minneapolis, MN.; Minnesota Univ., Minneapolis. Center for Children with Chronic Illness and Disability.; Group Health Foundation, Washington, DC.