ERIC Number: ED404784
Record Type: RIE
Publication Date: 1996
Personalized Pediatric Coordinated Services (PPCS): A Family-Centered Model of Coordinated Services for Young Children with Chronic Illness and Disabilities.
Hattie Larlham Foundation, Mantua, OH.
This report describes a model designed to provide family-centered, community-based coordinated services for families and their children with chronic health care needs. The model, which was implemented to serve 208 children over a 5-year period, is based on three key concepts: families should have the choice to receive services in their homes and communities instead of hospitals and/or long term care facilities; keeping children in acute care or specialty hospitals or long term care facilities is more costly; and principles of family-centered care must be incorporated into a model of coordinated services for children with chronic health care needs. Components of the model include family-centered service coordination, specialized respite care, and community development through training and consultation. Functions of the project design include: demonstration and validation of the model; training; administration and management; dissemination, replication, and impact; and evaluation and research. The report includes a description of the participants, barriers to program implementation, the accomplishments and impact of the program, dissemination activities, and charts and summaries of replication accomplishments. The results of a family satisfaction survey are also included. An appendix includes the project's management plan and an outside evaluator's review of the project. (Contains 22 references.) (Author/CR)
Descriptors: Agency Cooperation, Chronic Illness, Community Programs, Consultation Programs, Cooperative Programs, Coordination, Delivery Systems, Disabilities, Early Intervention, Family Involvement, Family Needs, Family Programs, Health Services, Home Programs, Integrated Services, Models, Parent Attitudes, Respite Care, Satisfaction, Technical Assistance, Training, Young Children
Publication Type: Reports - Descriptive
Education Level: N/A
Sponsor: Office of Special Education and Rehabilitative Services (ED), Washington, DC.
Authoring Institution: Hattie Larlham Foundation, Mantua, OH.