ERIC Number: ED400633
Record Type: Non-Journal
Publication Date: 1994-Sep
Reference Count: N/A
Exploratory Study of Barriers in Birth to Three Services: Children with Disabilities and Special Health Care Needs in Washington State Public Programs.
Lonner, Thomas; And Others
This study examined barriers to utilizing services for children, birth to age 3, through in-depth individual and group interviews with 70 parents and direct service personnel of provider agencies in seven Washington counties. Part 1 of this report offers examples and discussion of the difficulties parents have accessing services and how localities try to improve their services. Part 2 explores the specific experiences of parents from special populations, including rural or urban locations, poor, Hispanic Migrant, American Indian, or military. Among findings were the following: (1) the presence of a moderately to severely disabled infant or toddler challenges every aspect of a family's life; (2) the array of early intervention services is perceived as a patchwork of pieces or as a maze in which it is possible to "fall between the cracks"; (3) accessibility is a more major issue than availability of services; (4) Interim Family Resources Coordinators are seen as useful intermediaries; (5) parents need the support of other similar parents; (6) existing services are not adequately family-centered; (7) local efforts at better coordination of services cannot overcome basic system problems; and (8) parents fear health care reform, at both the state and federal levels. An appendix provides additional information on the study's methodology. (CR)
Descriptors: Accessibility (for Disabled), Agency Cooperation, American Indians, Coping, Delivery Systems, Disabilities, Early Childhood Education, Early Intervention, Economically Disadvantaged, Family Needs, Family Problems, Family Programs, Health Care Costs, Health Insurance, Human Services, Infants, Migrant Problems, Military Personnel, Parent Associations, Parent Attitudes, Parent Participation, Participant Satisfaction, Rural Urban Differences, Social Support Groups, Special Health Problems, Toddlers
Publication Type: Reports - Research
Education Level: N/A
Authoring Institution: Washington State Dept. of Social and Health Services, Olympia. Office of Research and Data Analysis.
Identifiers - Location: Washington