ERIC Number: ED399718
Record Type: Non-Journal
Publication Date: 1994-Oct-1
Reference Count: N/A
Partners in Health: Self-Help/Mutual Support for Culturally Diverse Children with Special Health Needs and Their Families. Final Report.
Huber, Mary; And Others
This report describes a federally funded project designed to meet the needs of culturally diverse children with special health care needs and their families in New York. The goal was to establish a model program that would demonstrate that the quality of life for culturally diverse children with special health needs and their families would be enhanced and strengthened by linking: (1) case management for children with special health care needs and their families, and (2) community-based self-help/mutual support programs. The project funded development of models for the delivery of case management services to children with special health care needs and their families in 11 countries and in New York City, New York. Case management models had these goals: to develop a policy statement of the need for culturally competent programs; to identify culturally diverse populations within their areas; to provide special outreach services to culturally diverse populations; and to train staff in cultural competency. Self-help clearinghouses worked to enhance self-help/mutual support to culturally diverse families of children with special health care needs. In addition to training clearinghouse and case management project staffs in cultural competency, the project implemented a series of seminars, called Partners in Policy Making, to provide leadership training to parents as a way of empowering culturally diverse families in the care of their children. Twenty-four appendices are attached to the report and include: a directory of New York self-help/mutual support services for children with special health needs; guidelines for creating a local self-help/mutual support group, in English and Spanish; evaluation reports of training sessions; and materials developed by the clearinghouses. (CR)
Descriptors: Child Advocacy, Children, Clearinghouses, Community Programs, Cultural Awareness, Cultural Differences, Demonstration Programs, Family Needs, Family Programs, Leadership Training, Minority Groups, Models, Outreach Programs, Parent Empowerment, Self Help Programs, Social Support Groups, Special Health Problems, Staff Development
Publication Type: Reports - Descriptive; Reference Materials - Directories/Catalogs
Education Level: N/A
Sponsor: Health Resources and Services Administration (DHHS/PHS), Washington, DC. Maternal and Child Health Bureau.
Authoring Institution: New York State Dept. of Health, Albany. Bureau of Child and Adolescent Health.
Identifiers - Location: New York