ERIC Number: ED386013
Record Type: RIE
Publication Date: 1996
Down Syndrome, Birth to Adulthood: Giving Families an EDGE.
Rynders, John E.; Horrobin, J. Margaret
This updated book provides a collection of longitudinal perspectives on experiences of individuals with Down Syndrome, from birth to adulthood. The book is an outgrowth of a federally funded early intervention study called Project EDGE (Expanding Developmental Growth through Education). Contents cover the following topics: historical review of developments regarding Down Syndrome (John Rynders), life as a journey (J. Rynders), the new baby's life within the family, (Janet Sophie Thayer), health promotion during the early years (Margaret Horrobin), stimulation of the young child's development (J. Rynders), family adjustment and adaptation (Brian H. Abery), becoming literate and socialized during the school years (J. Rynders), participating in community recreation (J. Rynders et al.), the transition from school to work and independent living (Alan Fletcher), maintaining health into adulthood (M. Horrobin), perspectives of parents and siblings (J. Rynders), and the life views of young adults with Down Syndrome (I. Karon Sherarts). Numerous photographs illustrate the personal accounts. A resource compilation by Shannon Matson lists national organizations on Down Syndrome, assistive technology and communication aids, computers/technology resource centers, recreation resources, books, and journals. Also appended are: information on reading skill stages, tips for adapting common recreation activities for young adults, and a list of assessment instruments and where they can be obtained. (Individual chapters contain references.) (SW)
Descriptors: Adapted Physical Education, Adults, Child Development, Child Health, Child Rearing, Children, Community Recreation Programs, Daily Living Skills, Developmental Stages, Downs Syndrome, Early Experience, Education Work Relationship, Family Relationship, Health Promotion, Infants, Information Sources, National Organizations, Parent Child Relationship, Parent Role, Personal Narratives, Physical Health, Stimulation, Student Adjustment, Student Development, Student Experience, Vocational Rehabilitation
Love Publishing Co., 1777 S. Bellaire St., Denver, CO 80222 ($29.95).
Publication Type: Books; Guides - Non-Classroom; Collected Works - General
Education Level: N/A
Audience: Parents; Practitioners
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Note: For the 1974 book, see ED 100 087.