ERIC Number: ED374612
Record Type: Non-Journal
Publication Date: 1991
Reference Count: N/A
The Marfan Syndrome: Physical Activity Guidelines for Physical Educators, Coaches and Physicians.
Romeo, Thomas J.
Intended for physical educators, this manual provides guidelines for providing safe and effective physical activity programs for children with Marfan syndrome, a congenital condition involving the connective tissues and the probable cause of sudden death by heart failure of some young competitive athletes in recent cases. The manual includes information regarding: Public Law 94-142, the Education for All Handicapped Children Act; physical characteristics associated with the disorder and resultant physical needs; potential psychosocial implications; the establishment of educational goals to address these implications; and competencies and/or sensitivities needed by involved professionals. Suggested guidelines for physical activity, instructional methods and strategies, and approved curricular activities are included. In addition, contraindicated activities are identified as well as implications for safety and effectiveness in physical activity programs. The importance of applying these guidelines only under the supervision of the treating physician is stressed. Additional features of the manual include a list of Advisory Panel members of the National Marfan Foundation, a list of organizational resources, and a glossary. Contains 78 references. (DB)
Descriptors: Adapted Physical Education, Cardiovascular System, Congenital Impairments, Elementary Secondary Education, Guidelines, Heart Disorders, Physical Activities, Physical Disabilities, Physical Fitness, Safety, Special Health Problems, Student Educational Objectives, Symptoms (Individual Disorders)
National Marfan Foundation, 382 Main St., Port Washington, NY 11050.
Publication Type: Guides - Non-Classroom
Education Level: N/A
Authoring Institution: National Marfan Foundation, Port Washington, NY.
Identifiers - Laws, Policies, & Programs: Education for All Handicapped Children Act