ERIC Number: ED352766
Record Type: RIE
Publication Date: 1992
Working toward a Balance in Our Lives: A Booklet for Children with Disabilities and Special Health Care Needs. Project School Care.
Children's Hospital, Boston, MA.
This booklet documents the ability of parents of children with special health needs and disabilities to achieve balance in their lives, by moving from crisis to control, from challenge to opportunity, from questions to answers. The booklet discusses concerns that confront parents of children with special needs, and answers the most common questions families have as they move through hospital, home, and school experiences. Individual chapters cover: the hospital experience; after hospitalization; home care, home nursing, and respite care; financing health care; equipment; education; vocational training and planning for adulthood; and recreation and travel. Appendixes offer: (1) suggestions for record keeping; (2) a list of organizational resources, including government agencies, general disability groups, health and professional associations, parent groups, and groups dealing specifically with such issues as education, financing, recreation, and legal aspects; (3) over 50 suggested readings; and (4) a glossary. (JDD)
Descriptors: Child Rearing, Coping, Disabilities, Family Environment, Financial Support, Home Programs, Hospitalized Children, Human Services, Medical Services, Parent Role, Recreation, Respite Care, Special Health Problems, Vocational Education
Children's Hospital of Boston, Project School Care, Gardner and Longwood Ave., Boston, MA 02115 ($10).
Publication Type: Guides - Non-Classroom
Education Level: N/A
Sponsor: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.
Authoring Institution: Children's Hospital, Boston, MA.
Grant or Contract Numbers: N/A
Note: Funds also provided by a grant from the Charles A. Lindbergh Fund, Inc.