ERIC Number: ED352757
Record Type: Non-Journal
Publication Date: 1992-Nov
Reference Count: N/A
Waiting for Community Services: Support and Service Needs of Families with Adult Members Who Have MR/DD.
Hayden, Mary F.; And Others
Policy Research Brief, v4 n2 Nov 1992
This policy brief reports on a study of how families and agencies cope with growing waiting periods for community services for adults who have mental retardation or developmental disabilities (MR/DD). Preliminary information looks at reasons for long waits, characteristics of families waiting for services, and impact of adult members with MR/DD on families. A qualitative study, which utilized four focus groups, participant observation of several families, and semi-structured interviews of adults with MR/DD, is then reported. Results are presented in terms of: contributions of adult family members with MR/DD to their families; stressors experienced by adult family members and their families; needs of adults with MR/DD and their families while waiting for services; services currently available to meet needs; services and supports needed but not currently received; barriers to families receiving existing services; involving others in supporting adult members and their families; and support needs during the transition from living at home to living elsewhere. The report concludes that families should not be disadvantaged because they decide to have their adult family member remain at home and that the MR/DD delivery system needs to be looked at in its entirety. (Contains 33 references.) (DB)
Descriptors: Accessibility (for Disabled), Adults, Agencies, Attitudes, Change Strategies, Community Programs, Delivery Systems, Developmental Disabilities, Family Problems, Mental Retardation, Needs Assessment, Program Development, Qualitative Research, Respite Care, Services, Social Services, Time, Transitional Programs
Institute on Community Integration, University of Minnesota, 109 Pattee Hall, 150 Pillsbury Dr., S.E., Minneapolis, MN 55455.
Publication Type: Reports - Research; Collected Works - Serials
Education Level: N/A
Sponsor: Administration on Developmental Disabilities (DHHS), Washington, DC.; National Inst. on Disability and Rehabilitation Research (ED/OSERS), Washington, DC.
Authoring Institution: Minnesota Univ., Minneapolis. Research and Training Center on Residential Services and Community Living.