ERIC Number: ED327787
Record Type: RIE
Publication Date: 1989-Nov
How Case Managers Perceive Older Parents as Caregivers of Developmentally Disabled Adult Offsprings.
Smith, Gregory C.; Tobin, Sheldon S.
Developmentally disabled adults who are cared for at home by their older parents present a challenge because community-based social and health services are required to meet the needs of both the aging parents and the offspring. In this study, 11 local case managers were interviewed in depth, for 2 hours, about their work with parents of developmentally disabled adults. Findings from this pilot study affirmed parents' resistance to planning for permanency despite increased frailties. Augmenting resistance and impeding assistance is a scarcity of residential options. Like the parents, workers were ambivalent about disrupting interdependence. They wished to provide help with future plans before crises occur, and also to keep aging families together for as long as possible by arranging needed services. Workers remarked that parents were intimidated by their youth and professional status, and that they feared them as threatening separation. Also reported was frustration over the mandate not to treat parents as clients, as well as excessive caseloads prohibiting more interaction with older families. Workers desired, instead, to assist parents when they first encountered age-related losses, and to learn more about aging services. Results of this pilot investigation suggest that geriatric specialists are needed to serve both aging developmentally disabled clients and their elderly caregivers. Sixteen references are included. (TE)
Publication Type: Reports - Research; Speeches/Meeting Papers
Education Level: N/A
Authoring Institution: N/A
Note: Paper presented at the Annual Scientific Meeting of the Gerontological Society (42nd, Minneapolis, MN, November 17-20, 1989).