ERIC Number: ED317936
Record Type: RIE
Publication Date: 1990-Apr
Children with HIV/AIDS: A Sourcebook for Caring. A Guide for Establishing Programs for Children.
Allbritten, Dorothy J.
This manual is intended for administrators and professional caregivers who wish to provide comprehensive health care to children with Human Immunodeficiency Virus (HIV) infection, the cause of Acquired Immune Deficiency Syndrome (AIDS). Chapter 1, an overview, examines the societal and economic issues that affect care and treatment of children infected with HIV. Chapter 2 describes five key components of pediatric HIV/AIDS programs: long-term planning for chronic illness; child-centered and family-focused approach; interdisciplinary, collaborative care; case management; and community support. Chapter 3, "Mobilizing for Program Organization," is a step-by-step guide to establishing a program of care through assessment, planning, implementation, and evaluation. Chapter 4 provides extended descriptions of the 10 hospital pediatric HIV/AIDS programs throughout the country from which information was gathered to produce this manual. Appended are the following resources: (1) official definitions and classifications of HIV-related diseases; (2) community assessment guide; (3) a list of state AIDS coordinators; (4) an outline of critical program components through the continuum of care; (5) a list of resources for service providers including AIDS clinical trial units, demonstration projects, organizations, audiovisuals, literature, and telephone contacts; and (6) a listing of the 10 highlighted programs. (TE)
Descriptors: Acquired Immune Deficiency Syndrome, Child Caregivers, Child Welfare, Childhood Needs, Chronic Illness, Community Health Services, Family Health, Health Services, Hospitalized Children, Long Term Care, Medical Services, Pediatrics, Program Descriptions, Program Development, Special Health Problems
National Association of Children's Hospitals and Related Institutions, Inc., 401 Wythe St., Alexandria, VA 22314 ($7.50).
Publication Type: Guides - General
Education Level: N/A
Sponsor: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Bureau of Maternal and Child Health and Resources Development.; Children's Hospital of New Jersey, Newark. National Pediatric HIV Resource Center.; New Jersey State Dept. of Health, Trenton.
Authoring Institution: National Association of Children's Hospitals and Related Institutions, Alexandria, VA.