NotesFAQContact Us
Search Tips
ERIC Number: ED309587
Record Type: Non-Journal
Publication Date: 1984
Pages: 30
Abstractor: N/A
Reference Count: N/A
ISBN: ISBN-0-918335-00-0
The Marfan Syndrome [and] Fact Sheet.
Pyeritz, Reed E.; Conant, Julia
This introduction to the Marfan syndrome, a heritable disorder of connective tissue primarily affecting the bones and ligaments, eyes, cardiovascular system, and lungs, is intended for a general audience. The question-and-answer format was chosen by individuals with the syndrome to reflect their major questions and concerns. It incorporates the experiences of patients, relatives, and health professionals. Topics addressed include: skeletal features; effects on the eyes; cardiovascular features; other features; causes; diagnosis; who can be affected; potential for a cure; the most effective forms of treatment; the outlook and lifestyle for affected persons; common parent reactions; common reactions of affected adults; reactions of teenagers and young adults; family concerns; use of medications or special diets; how the syndrome is passed in families; the decision of affected persons to have children; need for informed physicians in routine medical care; current research; and organizations providing support and information. (MSE)
National Marfan Foundation, 382 Main St., Port Washington, NY 11050 (Document, $2.00; Fact Sheet, no charge for single copies, $10.00 for 100 copies).
Publication Type: Reports - Descriptive; Books
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: National Marfan Foundation, Port Washington, NY.