ERIC Number: ED309578
Record Type: RIE
Publication Date: 1988-Aug
Reference Count: N/A
Parents and Professionals: Working Together.
Marcus, Lee M.; Singer, Bernice
This paper discusses perspectives on the relationship between parents and professionals in the diagnosis and treatment of children with autism. In the first section, the mother of an autistic adult recounts her early experiences in trying to obtain needed services and support for her then young child. A professional then describes the negative and inappropriate professional attitudes and approaches illustrated in the mother's narrative. It is noted that parents have important and reliable information to share about their child, and ignoring this information can result in delay in necessary services and enormous additional stress on the family. The following inappropriate professional responses are illustrated: blame and scapegoating of parents, failure to share information openly, lack of parent-professional partnership, permissive approach to treatment, and transient nature of professional involvement. The TEACCH (Treatment and Education of Autistic and Related Communication-Handicapped Children) program in North Carolina is then presented as a model for meeting the needs of children with autism and their families in a collaborative manner, based on mutuality of trust and respect. The TEACCH program involves parents in the diagnosis and treatment process, integrates the program into the community, and provides continuity of service over time. (JDD)
Publication Type: Speeches/Meeting Papers; Reports - Descriptive
Education Level: N/A
Authoring Institution: N/A
Note: Paper presented at the International Conference on Family Support (1st, Stockholm, Sweden, August 14-19, 1988).